Pathological Demand Avoidance – aktueller Forschungsstand und kritische Diskussion
Abstract
Zusammenfassung: Bei der „Pathological Demand Avoidance“ (PDA) handelt es sich um ein kontrovers diskutiertes Konzept zur Beschreibung von Kindern, die durch ein zwanghaftes Vermeiden jeglicher Anforderungen klinisch auffällig werden. PDA wird als extremes und angstgetriebenes Bedürfnis nach Kontrolle der Umwelt, der Verweigerung von alltäglichen Anforderungen und Erwartungen beschrieben. Die Symptomatik wird mit der Autismus-Spektrum-Störung in Zusammenhang gebracht. Unter Berücksichtigung des aktuellen Forschungsstandes diskutiert die vorliegende Arbeit die Frage, ob PDA als eigenständige diagnostische Entität einzuordnen ist, stellt den Zusammenhang zu Autismus sowie anderen psychischen Störungen und die Relevanz dieses Verhaltensprofils für Verlauf und Behandlung dar. Es wird geschlussfolgert, dass PDA weder eine eigenständige diagnostische Entität noch einen Subtyp des Autismus darstellt, sondern als ein Verhaltensprofil zu begreifen ist, das sich ungünstig auf den Verlauf bei verschiedenen Störungsbildern auswirken kann. Es wird deutlich gemacht, dass PDA eine Facette in einem komplexen Störungsmodell darstellen kann, in dem nicht nur Charakteristika der betroffenen Person selbst, sondern auch Erziehungspersonen sowie deren eigene Psychopathologie eine zentrale Rolle einnehmen. Entscheidend sind die Reaktionen der Interaktionspartner_innen auf das Verhaltensprofil sowie die individuellen Behandlungsentscheidungen. Substanzielle Forschung hinsichtlich des Verlaufs verschiedener Störungen bei Vorliegen des Verhaltensprofils PDA sowie im Hinblick auf das Ansprechen auf therapeutische Interventionen ist erforderlich.
Abstract: Pathological demand avoidance (PDA) describes children who obsessively avoid any demand to a clinically relevant extent and is presently the subject of controversial discussion. Their behavior may be interpreted as an attempt to reduce anxiety by establishing security and predictability through rigid control of the environment as well as the demands and expectations of others. The symptoms are described in the context of autism spectrum disorder. This article reviews the current state of research and discusses the questionable validity of pathological demand avoidance as an independent diagnostic entity. It also addresses the impact of the behavior profile on development and treatment. This paper concludes that PDA is not a diagnostic entity nor a subtype of autism; rather, it is a behavior profile that can be associated with adverse illness progression and unfavorable outcomes. PDA is one feature in a complex model. We must consider not only the patient’s characteristics but also those of the caregiver and their psychopathology. The reactions of the interaction partners as well as the treatment decisions play a key role play for the affected individuals. Substantial research is needed concerning the occurrence of the behavior profile PDA in diverse disorders, treatment options, and treatment responses.
Literatur
2007). The distinctive clinical and educational needs of children with Pathological Demand Avoidance syndrome: Guidelines for good practice. Good Autism Practice, 8, 3–11. Available at: https://positiveaboutautism.co.uk/uploads/9/7/4/5/97454370/strategies-for-teaching-pupils-with-pda.pdf
(2020). Individual differences, ADHD, adult pathological demand avoidance, and delinquency. Research in Developmental Disabilities, 105, 103733. https://doi.org/10.1016/j.ridd.2020.103733
(2019). The measurement of adult pathological demand avoidance traits. Journal of Autism & Developmental Disorders, 49, 481–494. https://doi.org/10.1007/s10803-018-3722-7
(2014). Commentary: PDA – Public display of affection or pathological demand avoidance? Reflections on O’Nions et al. (2014). Journal of Child Psychology and Psychiatry, 55, 769–770. https://doi.org/10.1111/jcpp.12275.
(2015). Extreme (“pathological”) demand avoidance in autism: a general population study in the Faroe Islands. European child & adolescent psychiatry, 24 (8): 979–984.
(2016). Parents’ experiences of professionals’ involvement for children with extreme demand avoidance. International Journal of Developmental Disabilities, 64, 16–24. https://doi.org/10.1080/20473869.2016.1204743
(2020). Response: Demand Avoidance Phenomena: A manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a response to Woods (2020). Child & Adolescent Mental Health, 25, 71–73. https://doi.org/10.1111/camh.12376
(2020). Commentary: Anxiety and behaviour in and beyond ASD; does the idea of ‚PDA‘ really help? A commentary on Stuart et al. (2020). Child & Adolescent Mental Health, 25, 74–76. https://doi.org/10.1111/camh.12379
(2018). Pathological Demand Avoidance: Symptoms but not a syndrome. Lancet Child & Adolescent Health, 2, 455–464. https://doi.org/10.1016/S2352-4642(18)30044-0
(2021). Pathological demand avoidance in children and adolescents: A systematic review. Autism, 25, 2162–3276. https://doi.org/10.1177/13623613211034382
(2018). Commentary: PDA – what’s in a name? Dimensions of difficulty in children reported to have an ASD and features of extreme/pathological demand avoidance: A commentary on O’Nions et al. (2017). Child & Adolescent Mental Health, 23, 387–388. https://doi.org/10.1111/camh.12273
(2003). Pathological demand avoidance syndrome: A necessary distinction within the pervasive developmental disorders. Archives of Disease in Childhood, 88, 595–600. https://doi.org/10.1136/adc.88.7.595
(2014). Development of the ‚Extreme Demand Avoidance Questionnaire‘ (EDA-Q): Preliminary observations on a trait measure for Pathological Demand Avoidance. Journal of Child Psychology and Psychiatry, 55, 758–768. https://doi.org/10.1111/jcpp.12149
(2016). Identifying features of ‚pathological demand avoidance‘ using the Diagnostic Interview for Social and Communication Disorders (DISCO). European Child & Adolescent Psychiatry, 25, 407–419. https://doi.org/10.1007/s00787-015-0740-2
(2021). Extreme Demand Avoidance in Children with Autism Spectrum Disorder: Refinement of a Caregiver-Report Measure. Advances in Neurodevelopmental Disorder, 5, 269–281. https://doi.org/10.1007/s41252-021-00203-z
(2018). Dimensions of difficulty in children reported to have an autism spectrum diagnosis and features of extreme/‚pathological‘ demand avoidance. Child & Adolescent Mental Health, 23, 220–227. https://doi.org/10.1111/camh.12242
(2014). Pathological demand avoidance: Exploring the behavioural profile. Autism, 18, 538–544. https://doi.org/10.1177/1362361313481861
(PDA Society . (2020). What ist a PDA? A guide to the Pathological Demand Avoidance profil of autism. Available at: https://www.pdasociety.org.uk/wp-content/uploads/2021/04/What-is-PDA-booklet-website-v2.1.pdf2020). Avoidance and its bi-directional relationship with conditioned fear: Mechanisms, moderators, and clinical implications. Behaviour Research & Therapy, 126, 103550. https://doi.org/10.1016/j.brat.2020.103550
(2014). Pathological Demand Avoidance in a population-based cohort of children with epilepsy: Four case studies. Research in Developmental Disabilities, 35, 3236–3244. https://doi.org/10.1016/j.ridd.2014.08.005
(2015). Understanding psychological reactance: New developments and findings. Zeitschrift für Psychologie, 223, 205–214. https://doi.org/10.1027/2151-2604/a000222
(2020). Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents. Child & Adolescent Mental Health, 25, 59–67. https://doi.org/10.1111/camh.12336
(2022). Understanding the contributions of trait autism and anxiety to extreme demand avoidance in the adult general population. Journal of Autism and Developmental Disorders, https://doi.org/10.1007/s10803-022-05469-3
(2020). Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020). Child & Adolescent Mental Health, 25, 68–70. https://doi.org/10.1111/camh.12368
(2022). Global prevalence of autism: A systematic review update. Autism Research, 15, 778–790. https://doi.org/10.1002/aur.2696
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