What Do the Bereaved by Suicide Communicate in Online Support Groups?
A Content Analysis
Abstract
Background: Every year, more than six million people lose a loved one through suicide. These bereaved by suicide are at relatively high risk for mental illnesses including suicide. The social stigma attached to suicide often makes it difficult to talk about grief. Participating in online forums may be beneficial for the bereaved by suicide, but it is unknown what they communicate in these forums. Aims: What do the bereaved by suicide communicate in online forums? We examined which self-help mechanisms, grief reactions, and experiences with health-care services they shared online. Method: We conducted a content analysis of 1,250 messages from 165 members of two Dutch language forums for the bereaved by suicide. Results: We found that sharing personal experiences featured most prominently in the messages, often with emotional expressions of grief. Other frequently used self-help mechanisms were expressions of support or empathy, providing advice, and universality (recognition), while experiences with health-care services featured only occasionally. Compared with previous studies about online forums for somatic illnesses, the bereaved by suicide communicated more personal experiences and engaged much less in chitchat. Conclusion: Online forums appear to have relevant additional value as a platform for talking about grief and finding support.
References
2000). Predictors and correlates of bereavement in suicide support group participants. Suicide and Life-Threatening Behavior, 30, 104–124.
(2011). How the Internet is changing the experience of bereavement by suicide: A qualitative study in the UK. Health, 15, 173–187.
(2001). Bereavement after suicide – how far have we come and where do we go from here? Crisis, 23, 102–108.
(1995). Grief reactions and recovery in a support group for people bereaved by suicide. Crisis, 16, 27–33.
(2000). The impact of suicide on relatives and friends. In , International handbook of suicide and attempted suicide (pp. 467–484). Chichester, UK: Wiley & Sons.
(2009). An analysis of social support exchanges in online HIV/AIDS self-help groups. Computers in Human Behavior, 25, 911–918.
(1992). Controllability of stressful events and satisfaction with spouse support behaviors. Communication Research, 19, 154–174.
(2005). Do suicide survivors suffer social stigma: A review of the literature. Perspectives in Psychiatric Care, 41, 14–21.
(2006). Grief shortly after suicide and natural death: A comparative study among spouses and first-degree relatives. Suicide and Life-Threatening Behavior, 36, 418–432.
(2008). Soliciting and providing social support over the Internet: An investigation of online eating disorder support groups. Journal of Computer-Mediated Communication, 14, 67–78.
(2001). Ethical issues in qualitative research on Internet communities. British Medical Journal, 323, 1103–1105.
(2008). Internet support groups for suicide survivors: A new mode for gaining bereavement assistance. OMEGA, 57, 217–243.
(2009). Personal growth after a suicide loss: Cross-sectional findings suggest growth after loss may be associated with better mental health among survivors. OMEGA, 59, 181–202.
(1999). An exploration of helping processes in an online self-help group focusing on issues of disability. Health & Social Work, 24, 220–231.
(2004). Ethical dilemmas in research on Internet communities. Qualitative Health Research, 14, 124–134.
(2010). Suicide bereavement and coping: A descriptive and interpretative analysis of the coping process. Procedia Social and Behavioral Sciences, 5, 526–535.
(2003). Helping people bereaved by suicide. Their needs may require special attention. British Journal of Medicine, 327, 177–178.
(2001). Cyber community in the valley of the shadow of death. Journal of Loss and Trauma, 6, 135–146.
(2011a). Suicide bereavement: Why study survivors of suicide loss? In , Grief after suicide. Understanding the consequences and caring for the survivors (pp. 3–17). New York, NY: Taylor and Francis.
(2011b). Is suicide bereavement different? A framework for rethinking the question. In , Grief after suicide. Understanding the consequences and caring for the survivors (pp. 19–42). New York, NY: Taylor and Francis.
(1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.
(2010). Coping with infertility online: An examination of self-help mechanisms in an online infertility support group. Patient Education and Counseling, 81, 315–318.
(2007). Software for qualitative data analysis (VERBI Software). Berlin, Germany: Spezialforschung GmbH.
. (2008). Interventions for people bereaved through suicide: systematic review. The British Journal of Psychiatry, 193, 438–443.
(2004). Complicated grief in survivors of suicide. Crisis, 25, 12–18.
(2008). Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. CyberPsychology & Behavior, 11, 371–374.
(2007). Disclosing and sharing emotions: Psychological, social and health consequences. In , Handbook of bereavement research (pp. 517–543). Washington, DC: American Psychological Association.
(2002). Online support for caregivers of people with a mental illness. Psychiatric Rehabilitation Journal, 26, 70–77.
(2008). Suicide survivors’ mental health and grief reactions: A systematic review of controlled studies. Suicide and Life-Threatening Behavior, 38, 13–29.
(2011). Surviving grief: An analysis of the exchange of hope in online grief communities. OMEGA, 63, 161–181.
(2008). Coping with somatic illnesses in online support groups: Do the feared disadvantages actually occur? Computers in Human Behavior, 24, 309–324.
(2009). Social support and unsolicited advice in a bipolar disorder online forum. Qualitative Health Research, 19, 931–942.
(2011). Suicide prevention (SUPRE). Retrieved from www.who.int/mental_health/prevention/suicide/suicideprevent/en/
. (2011). Mental health. Facts and figures. Retrieved from www.euro.who.int/en/what-we-do/health-topics/noncommunicable-diseases/mental-health/facts-and-figures
. (