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Original Articles and Reviews

Treating Illness Distress in Chronic Illness

Integrating Mental Health Approaches With Illness Self-Management

Published Online:https://doi.org/10.1027/1016-9040/a000352

Abstract. Cognitive-behavioral therapy (CBT) is an evidence-based treatment for depression and anxiety recommended for those with and without physical long-term conditions (LTCs). However, the cognitive-behavioral mechanisms targeted in CBT protocols are based on empirical cognitive-behavioral models of depression and anxiety. In these models, emotions are conceptualized as primary mental health disorders rather than a reaction to the challenges of living with a LTC commonly referred to as illness distress. This raises important clinical questions with theoretical implications. These include: Is the experience of illness distress conceptually distinct from primary mental health diagnoses of anxiety and mood disorder? Are there unique cognitive-behavioral mechanisms related to illness self-management, which should be incorporated into CBT for illness distress? How can illness self-management interventions be embedded within existing CBT protocols for depression and anxiety? To address these questions, we distinguish between primary mental health disorders and illness distress conceptually and explore the impact of this on tailored treatment planning and engagement. Second, we review how health psychology theoretical models can help to inform modifications of existing cognitive-behavioral treatments for anxiety and depression to better support the needs of individuals experiencing illness distress. Third, we provide examples of how to embed processes important for illness self-management including, illness cognitions and adherence, alongside existing CBT techniques. The mechanisms and intervention techniques discussed may help to inform the development of integrated CBT treatments for illness distress for future hypothesis testing in comparative effectiveness trials.

References

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing. First citation in articleCrossrefGoogle Scholar

  • Barefoot, J. C. & Williams, R. B. (2010). Hostility and health. In A. SteptoeK. FreelandJ. JenningsEds., Handbook of behavioral medicine (pp. 169–183). New York, NY: Springer. First citation in articleGoogle Scholar

  • Beck, A. T. (1976). Cognitive therapy and the emotional disorders. New York, NY: Penguin Group. First citation in articleGoogle Scholar

  • Bolton, C. E., Bevan-Smith, E. F., Blakey, J. D., Crowe, P., Elkin, S. L., Garrod, R. & Walmsley, S. (2013). British Thoracic Society guideline on pulmonary rehabilitation in adults: Accredited by NICE. Thorax, 68(Suppl 2), ii1–ii30. https://doi.org/10.1136/thoraxjnl-2013-203808 First citation in articleCrossrefGoogle Scholar

  • Browne, J. L., Ventura, A., Mosely, K. & Speight, J. (2013). “I call it the blame and shame disease”: A qualitative study about perceptions of social stigma surrounding type 2 diabetes. BMJ Open, 3, e003384. https://doi.org/10.1136/bmjopen-2013-003384 First citation in articleCrossrefGoogle Scholar

  • Chilcot, J., Hudson, J. L., Moss-Morris, R., Carroll, A., Game, D., Simpson, A. & Hotopf, M. (2018). Screening for psychological distress using the Patient Health Questionnaire Anxiety and Depression Scale (PHQ-ADS): Initial validation of structural validity in dialysis patients. General Hospital Psychiatry, 50(Supplement C), 15–19. https://doi.org/10.1016/j.genhosppsych.2017.09.007 First citation in articleCrossrefGoogle Scholar

  • Clark, D. A. & Beck, A. T. (2011). Cognitive therapy of anxiety disorders: Science and practice. New York, NY: Guilford Press. First citation in articleGoogle Scholar

  • Coventry, P. A., Hays, R., Dickens, C., Bundy, C., Garrett, C., Cherrington, A. & Chew-Graham, C. (2011). Talking about depression: A qualitative study of barriers to managing depression in people with long term conditions in primary care. BMC Family Practice, 12, 10. https://doi.org/10.1186/1471-2296-12-10 First citation in articleCrossrefGoogle Scholar

  • Coventry, P. A., Hudson, J. L., Kontopantelis, E., Archer, J., Richards, D. A., Gilbody, S. & Waheed, W. (2014). Characteristics of effective collaborative care for treatment of depression: A systematic review and meta-regression of 74 randomised controlled trials. PLoS One, 9, e108114. https://doi.org/10.1371/journal.pone.0108114 First citation in articleCrossrefGoogle Scholar

  • Das-Munshi, J., Goldberg, D., Bebbington, P. E., Bhugra, D. K., Brugha, T. S., Dewey, M. E., … Prince, M. (2008). Public health significance of mixed anxiety and depression: Beyond current classification. The British Journal of Psychiatry, 192, 171–177. https://doi.org/10.1192/bjp.bp.107.036707 First citation in articleCrossrefGoogle Scholar

  • de Lusignan, S., Jones, S., McCrae, N., Cookson, G. & Chan, T. (2016). IAPT LTC/MUS Pathfinder Evaluation Project. Surrey, UK: University of Surrey. First citation in articleGoogle Scholar

  • Detweiler-Bedell, J. B., Friedman, M. A., Leventhal, H., Miller, I. W. & Leventhal, E. A. (2008). Integrating co-morbid depression and chronic physical disease management: Identifying and resolving failures in self-regulation. Clinical Psychology Review, 28, 1426–1446. https://doi.org/10.1016/j.cpr.2008.09.002 First citation in articleCrossrefGoogle Scholar

  • Doran, G. T. (1981). There’s a SMART way to write management’s goals and objectives. In A. F. MillerJ. A. CunninghamEds., How to avoid costly job mismatches (Vol. 70 (11)). Management Review. First citation in articleGoogle Scholar

  • Dudley, R., Kuyken, W. & Padesky, C. A. (2011). Disorder specific and trans-diagnostic case conceptualisation. Clinical Psychology Review, 31, 213–224. https://doi.org/10.1016/j.cpr.2010.07.005 First citation in articleCrossrefGoogle Scholar

  • D’Zurilla, T. J. & Goldfried, M. R. (1971). Problem solving and behavior modification. Journal of Abnormal Psychology, 78, 107–126. https://doi.org/10.1037/h0031360 First citation in articleCrossrefGoogle Scholar

  • Esbitt, S. A., Tanenbaum, M. L. & Gonzalez, J. S. (2013). Disentangling clinical depression from diabetes-specific distress: Making sense of the mess we’ve made. In C. E. LLoydF. PouwerN. HermannsEds., Screening for depression and other psychological problems in diabetes (pp. 27–46). London, UK: Springer. First citation in articleGoogle Scholar

  • Folkman, S. & Greer, S. (2000). Promoting psychological well-being in the face of serious illness: When theory, research and practice inform each other. Psycho-Oncology, 9, 11–19. First citation in articleCrossrefGoogle Scholar

  • Geraghty, A. W. A., Santer, M., Williams, S., Mc Sharry, J., Little, P., Muñoz, R. F. & Moore, M. (2017). “You feel like your whole world is caving in”: A qualitative study of primary care patients’ conceptualisations of emotional distress. Health, 21, 295–315. https://doi.org/10.1177/1363459316674786 First citation in articleCrossrefGoogle Scholar

  • Goldberg, D. (2000). Plato versus Aristotle: Categorical and dimensional models for common mental disorders. Comprehensive Psychiatry, 41, 8–13. First citation in articleCrossrefGoogle Scholar

  • Gunn, J., Diggens, J., Hegarty, K. & Blashki, G. (2006). A systematic review of complex system interventions designed to increase recovery from depression in primary care. BMC Health Services Research, 6, 88. https://doi.org/10.1186/1472-6963-6-88 First citation in articleCrossrefGoogle Scholar

  • Hagger, M. S., Koch, S., Chatzisarantis, N. L. D. & Orbell, S. (2017). The common sense model of self-regulation: Meta-analysis and test of a process model. Psychological Bulletin, 143, 1117–1154. https://doi.org/10.1037/bul0000118 First citation in articleCrossrefGoogle Scholar

  • Hayes, S. C., Wilson, K. G., Gifford, E. V., Follette, V. M. & Strosahl, K. (1996). Experiential avoidance and behavioral disorders: A functional dimensional approach to diagnosis and treatment. Journal of Consulting and Clinical Psychology, 64, 1152–1168. First citation in articleCrossrefGoogle Scholar

  • Hibbard, J. & Gilburt, H. (2014). Supporting people to manage their health. An introduction to patient activation. London, UK: The King’s Fund. First citation in articleGoogle Scholar

  • Hind, D., Cotter, J., Thake, A., Bradburn, M., Cooper, C., Isaac, C. & House, A. (2014). Cognitive behavioural therapy for the treatment of depression in people with multiple sclerosis: A systematic review and meta-analysis. BMC Psychiatry, 14, 5. https://doi.org/10.1186/1471-244X-14-5 First citation in articleCrossrefGoogle Scholar

  • Horne, R., Hankins, M. & Jenkins, R. (2001). The Satisfaction with Information about Medicines Scale (SIMS): A new measurement tool for audit and research. Quality and Safety in Health Care, 10, 135–140. https://doi.org/10.1136/qhc.0100135 First citation in articleCrossrefGoogle Scholar

  • Horne, R. & Weinman, J. (1999). Patients’ beliefs about prescribed medicines and their role in adherence to treatment in chronic physical illness. Journal of Psychosomatic Research, 47, 555–567. First citation in articleCrossrefGoogle Scholar

  • Horne, R., Weinman, J. & Hankins, M. (1999). The Beliefs about Medicines Questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology & Health, 14, 1–24. https://doi.org/10.1080/08870449908407311 First citation in articleCrossrefGoogle Scholar

  • Horowitz, C. R., Rein, S. B. & Leventhal, H. (2004). A story of maladies, misconceptions and mishaps: Effective management of heart failure. Social Science & Medicine, 58, 631–643. First citation in articleCrossrefGoogle Scholar

  • Hudson, J. L., Bundy, C., Coventry, P. A. & Dickens, C. (2014). Exploring the relationship between cognitive illness representations and poor emotional health and their combined association with diabetes self-care. A systematic review with meta-analysis. Journal of Psychosomatic Research, 76, 265–274. https://doi.org/10.1016/j.jpsychores.2014.02.004 First citation in articleCrossrefGoogle Scholar

  • Jacobson, N. S., Martell, C. R. & Dimidjian, S. (2001). Behavioral activation treatment for depression: Returning to contextual roots. Clinical Psychology Science Practice, 8, 255–270. https://doi.org/10.1093/clipsy.8.3.255 First citation in articleCrossrefGoogle Scholar

  • Kaptein, A. A., Klok, T., Moss-Morris, R. & Brand, P. L. (2010). Illness perceptions: Impact on self-management and control in asthma. Current Opinion in Allergy and Clinical Immunology, 10, 194–199. https://doi.org/10.1097/ACI.0b013e32833950c1 First citation in articleCrossrefGoogle Scholar

  • Katon, W. & Roy-Byrne, P. P. (1991). Mixed anxiety and depression. Journal of Abnormal Psychology, 100, 337–345. First citation in articleCrossrefGoogle Scholar

  • Katon, W. J. (2011). Epidemiology and treatment of depression in patients with chronic medical illness. Dialogues in Clinical Neuroscience, 13, 7–23. First citation in articleGoogle Scholar

  • Knowles, S. E., Chew-Graham, C., Adeyemi, I., Coupe, N. & Coventry, P. A. (2015). Managing depression in people with multimorbidity: A qualitative evaluation of an integrated collaborative care model. BMC Family Practice, 16, 32. https://doi.org/10.1186/s12875-015-0246-5 First citation in articleCrossrefGoogle Scholar

  • Kreider, K. E. (2017). Diabetes distress or major depressive disorder? A practical approach to diagnosing and treating psychological comorbidities of diabetes. Diabetes Therapy, 8, 1–7. https://doi.org/10.1007/s13300-017-0231-1 First citation in articleCrossrefGoogle Scholar

  • Kroenke, K., Wu, J., Yu, Z., Bair, M. J., Kean, J., Stump, T. & Monahan, P. O. (2016). Patient Health Questionnaire Anxiety and Depression Scale: Initial validation in three clinical trials. Psychosomatic Medicine, 78, 716–727. https://doi.org/10.1016/j.genhosppsych.2010.03.006 First citation in articleCrossrefGoogle Scholar

  • Lazarus, R. S. (1991). Emotion and adaptation. Oxford, UK: Oxford University Press on Demand. First citation in articleGoogle Scholar

  • Lazarus, R. S. & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer. First citation in articleGoogle Scholar

  • Leventhal, H., Halm, E., Horowitz, C., Leventhal, E. A. & Ozakinci, G. (2004). Living with chronic illness: A contextualized, self-regulation approach. In S. SuttonA. BaumM. JohnstonEds., The Sage handbook of health psychology (pp. 197–240). London, UK: Sage Publications. First citation in articleGoogle Scholar

  • Leventhal, H., Leventhal, E. A. & Breland, J. Y. (2011). Cognitive science speaks to the “common-sense” of chronic illness management. Annals of Behavioral Medicine, 41, 152–163. https://doi.org/10.1007/s12160-010-9246-9 First citation in articleCrossrefGoogle Scholar

  • Leventhal, H., Phillips, L. A. & Burns, E. (2016). The common-sense model of self-regulation (CSM): A dynamic framework for understanding illness self-management. Journal of Behavioral Medicine, 39, 935–946. First citation in articleCrossrefGoogle Scholar

  • Livermore, N., Sharpe, L. & McKenzie, D. (2010). Prevention of panic attacks and panic disorder in COPD. European Respiratory Journal, 35, 557–563. https://doi.org/10.1183/09031936.00060309 First citation in articleCrossrefGoogle Scholar

  • Ma, X., Zhang, J., Zhong, W., Shu, C., Wang, F., Wen, J., … Liu, L. (2014). The diagnostic role of a short screening tool – the distress thermometer: A meta-analysis. Supportive Care in Cancer, 22, 1741–1755. https://doi.org/10.1007/s00520-014-2143-1 First citation in articleCrossrefGoogle Scholar

  • McAndrew, L. M., Musumeci-Szabó, T. J., Mora, P. A., Vileikyte, L., Burns, E., Halm, E. A., … Leventhal, H. (2008). Using the common sense model to design interventions for the prevention and management of chronic illness threats: From description to process. British Journal of Health Psychology, 13, 195–204. https://doi.org/10.1348/135910708X295604 First citation in articleCrossrefGoogle Scholar

  • McCracken, L. (2011). Mindfulness and acceptance in behavioral medicine: Current theory and practice. Oakland, CA: New Harbinger Publications. First citation in articleGoogle Scholar

  • Mc Sharry, J., Bishop, F. L., Moss-Morris, R. & Kendrick, T. (2013). “The chicken and egg thing”: Cognitive representations and self-management of multimorbidity in people with diabetes and depression. Psychology & Health, 28, 103–119. https://doi.org/10.1080/08870446.2012.716438 First citation in articleCrossrefGoogle Scholar

  • Moorey, S. & Greer, S. (2012). Oxford guide to CBT for people with cancer (2nd ed.). Oxford, UK: Oxford University Press. First citation in articleGoogle Scholar

  • Moss-Morris, R. (2013). Adjusting to chronic illness: Time for a unified theory. British Journal of Health Psychology, 18, 681–686. https://doi.org/10.1111/bjhp.12072 First citation in articleCrossrefGoogle Scholar

  • Moss-Morris, R., Weinman, J., Petrie, K. J., Horne, R., Cameron, L. D. & Buick, D. (2002). The Revised Illness Perception Questionnaire (IPQ-R). Psychology & Health, 17, 1–16. First citation in articleCrossrefGoogle Scholar

  • Moussavi, S., Chatterji, S., Verdes, E., Tandon, A., Patel, V. & Ustun, B. (2007). Depression, chronic diseases, and decrements in health: Results from the World Health Surveys. The Lancet, 370, 851–858. https://doi.org/10.1016/S0140-6736(07)61415-9 First citation in articleCrossrefGoogle Scholar

  • National Collaborating Centre for Mental Health. (2010). Depression in adults with a chronic physical health problem: Treatment and Management. London, UK: The British Psychological Society and The Royal College of Psychiatrists. First citation in articleGoogle Scholar

  • National Institute for Health and Clinical Excellence. (2009). Depression in adults with a chronic physical health problem: Full guideline. Retrieved from http://www.nice.org.uk/guidance/cg91/evidence/cg91-depression-with-a-chronic-physical-health-problem-full-guideline2 First citation in articleGoogle Scholar

  • National Institute for Health and Care Excellence. (2014). Behaviour change: individual approaches (PH49). London, UK: National Clinical Guideline Centre. First citation in articleGoogle Scholar

  • Naylor, C., Das, P., Ross, S., Honeyman, M., Thompson, J. & Gilburt, H. (2016). Bringing together physical and mental health. Retrieved from http://www.kingsfund.org.uk/sites/files/kf/field/field_publication_file/Bringing-together-Kings-Fund-March-2016_1.pdf First citation in articleGoogle Scholar

  • Naylor, C., Parsonage, M., McDaid, D., Knapp, M., Fossey, M. & Galea, A. (2012). Long-term conditions and mental health: The cost of co-morbidities. London, UK: The King’s Fund. First citation in articleGoogle Scholar

  • Nobis, S., Lehr, D., Ebert, D. D., Baumeister, H., Snoek, F., Riper, H. & Berking, M. (2015). Efficacy of a Web-based intervention with mobile phone support in treating depressive symptoms in adults with type 1 and type 2 diabetes: A randomized controlled trial. Diabetes Care, 38, 776–783. https://doi.org/10.2337/dc14-1728 First citation in articleCrossrefGoogle Scholar

  • Nolen-Hoeksema, S., Wisco, B. E. & Lyubomirsky, S. (2008). Rethinking rumination. Perspectives on Psychological Science, 3, 400–424. https://doi.org/10.1111/j.1745-6924.2008.00088.x First citation in articleCrossrefGoogle Scholar

  • Panagioti, M., Bower, P., Kontopantelis, E., Lovell, K., Gilbody, S., Waheed, W., … Coventry, P. A. (2016). Association between chronic physical conditions and the effectiveness of collaborative care for depression: An individual participant data meta-analysis. JAMA psychiatry, 73, 978–989. https://doi.org/10.1001/jamapsychiatry.2016.1794 First citation in articleCrossrefGoogle Scholar

  • Pennebaker, J. W. (1997). Writing about emotional experiences as a therapeutic process. Psychological Science, 8, 162–166. First citation in articleCrossrefGoogle Scholar

  • Peters, B. J., Overall, N. C. & Jamieson, J. P. (2014). Physiological and cognitive consequences of suppressing and expressing emotion in dyadic interactions. International Journal of Psychophysiology, 94, 100–107. https://doi.org/10.1016/j.ijpsycho.2014.07.015 First citation in articleCrossrefGoogle Scholar

  • Petrie, K. J., Cameron, L. D., Ellis, C. J., Buick, D. & Weinman, J. (2002). Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial. Psychosomatic Medicine, 64, 580–586. First citation in articleCrossrefGoogle Scholar

  • Petrie, K. J., Perry, K., Broadbent, E. & Weinman, J. (2012). A text message programme designed to modify patients’ illness and treatment beliefs improves self-reported adherence to asthma preventer medication. British Journal of Health Psychology, 17, 74–84. https://doi.org/10.1111/j.2044-8287.2011.02033.x First citation in articleCrossrefGoogle Scholar

  • Phillips, L. A., Leventhal, H. & Leventhal, E. A. (2013). Assessing theoretical predictors. Psychology & Health, 28, 1135–1151. https://doi.org/10.1080/08870446.2013.793798 First citation in articleGoogle Scholar

  • Polonsky, W. H., Fisher, L., Earles, J., Dudl, R. J., Lees, J., Mullan, J. & Jackson, R. A. (2005). Assessing psychosocial distress in diabetes development of the diabetes distress scale. Diabetes Care, 28, 626–631. https://doi.org/10.2337/diacare.28.3.626 First citation in articleCrossrefGoogle Scholar

  • Pyszczynski, T., Hamilton, J. C., Herring, F. H. & Greenberg, J. (1989). Depression, self-focused attention, and the negative memory bias. Journal of Personality and Social Psychology, 57, 351–357. First citation in articleCrossrefGoogle Scholar

  • Richardson, E. M., Schüz, N., Sanderson, K., Scott, J. L. & Schüz, B. (2017). Illness representations, coping, and illness outcomes in people with cancer: A systematic review and meta-analysis. Psycho-Oncology, 26, 724–737. https://doi.org/10.1002/pon.4213 First citation in articleCrossrefGoogle Scholar

  • Rimes, K. A. & Chalder, T. (2010). The Beliefs about Emotions Scale: Validity, reliability and sensitivity to change. Journal of Psychosomatic Research, 68, 285–292. https://doi.org/10.1016/j.jpsychores.2009.09.014 First citation in articleCrossrefGoogle Scholar

  • Roberts, S. E., Stern, M., Schreuder, F. M. & Watson, T. (2009). The use of pursed lips breathing in stable chronic obstructive pulmonary disease: A systematic review of the evidence. Physical Therapy Reviews, 14, 240–246. https://doi.org/10.1179/174328809X452908 First citation in articleCrossrefGoogle Scholar

  • Roth, A. & Pilling, S. (2007). The competences required to deliver effective cognitive and behavioural therapy for people with depression and with anxiety disorders. London, UK: Department of Health. First citation in articleGoogle Scholar

  • Snoek, F. J., Bremmer, M. A. & Hermanns, N. (2015). Constructs of depression and distress in diabetes: Time for an appraisal. The Lancet. Diabetes & Endocrinology, 3, 450–460. https://doi.org/10.1016/S2213-8587(15)00135-7 First citation in articleCrossrefGoogle Scholar

  • Steptoe, A. & Ayers, S. (2004). Stress, health and illness. In S. SuttonA. BaumM. JohnstonEds., The Sage handbook of health psychology (pp. 169–196). London, UK: Sage. First citation in articleGoogle Scholar

  • Tarrier, N. & Johnson, J. (2007). Case formulation in cognitive behaviour therapy: The treatment of challenging and complex cases. London, UK: Routledge. First citation in articleGoogle Scholar

  • Wells, A. (1997). Cognitive therapy of anxiety disorders. Chichester, UK: Wiley. First citation in articleGoogle Scholar

  • World Health Organization. (1996). Diagnostic and management guidelines for mental disorders in primary care. Retrieved from http://apps.who.int/classifications/icd10/browse/2010/en. Geneva, Switzerland: WHO First citation in articleGoogle Scholar