Selbstmanagement bei Krebstherapien fördern: Das Symptom-Navi-Programm
Abstract
Zusammenfassung. Hintergrund: Patientinnen und Patienten mit einer Krebstherapie sind mit krebs- und therapiebedingten Symptomen konfrontiert und fühlen sich im Umgang damit oft unsicher. Zur Förderung des Symptom-Selbstmanagements wurde das sogenannte Symptom-Navi-Programm (SNP) entwickelt. Es beinhaltet individualisierte Abgabe schriftlicher Kurzinformationen, genannt Symptom-Navi-Flyer (SNF), im Rahmen von halb-strukturierten pflegerischen Edukationsgesprächen. Ziel: Die Studie untersuchte, ob Betroffene das SNP (SNF und ihre individualisierte Abgabe im Rahmen strukturierter Gespräche) als unterstützend für ihr Symptom-Selbstmanagement erfahren. Methode: In einer qualitativen Studie wurden zehn halbstrukturierte Interviews im onkologisch ambulanten Setting durchgeführt. Die Interviews wurden anhand der thematischen Analyse nach 1-1Braun und Clarke (2006) ausgewertet. Ergebnisse: Insgesamt beschrieben die Befragten das SNP als sehr unterstützend für ihr Symptom-Selbstmanagement, dies in einer Situation, in der sie stark emotional herausgefordert waren. Die individualisierte Abgabe der SNF und Beratung schilderten sie als förderlich für ihr Symptom-Selbstmanagement. Sie beobachteten eine Erweiterung ihres Handlungsspielraums im Umgang mit den Symptomen. Die Befragten nutzten SNF auch um ihre Angehörigen zu informieren. Schlussfolgerungen: Das SNP ist aus der Patientinnen- und Patientenperspektive vielversprechend, um das Symptom-Selbstmanagement zu fördern. Es wird nun systematisch in die Versorgungspraxis implementiert und weiter evaluiert.
Abstract. Background: Cancer patients experience a variety of symptoms associated with their disease and treatment. Many patients express uncertainty how to self-manage these symptoms. We developed the Symptom-Navi-Program (SNP) to support cancer patients’ symptom self-management. The SNP comprises concise information leaflets, Symptom-Navi-Flyers (SNF), with content tailored to the needs of patients and nurse-led semi-structured consultations. Aim: The aim of the study was to to explore if patients experienced with the SNP with a focus on the perceived usefulness. Method: In a qualitative study, we conducted ten semi-structured interviews with cancer patients undergoing treatment. The interviews conduct and data analysis was based on thematic analysis as defined by 1-2Braun and Clarke (2006). Results: Overall, patients described the SNP as a helpful facilitator for their self-management of symptoms. They highlighted its usefulness in an emotionally challenging situation. Nurse-led education and SNF tailored to the individual situation were experienced as self-management empowering elements. Consequently, patients experienced to know and have more choices in their symptom management strategies. Patients also described to use SNF to inform their relatives. Conclusions: Patients experience the SNP as a promising tool to facilitate their symptom self-management. Its implementation in clinical practice will now be further evaluated.
Literatur
(2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77 – 101.
(2013). Assessment of needs, health-related quality of life, and satisfaction with care in breast cancer patients to better target supportive care. Annals of Oncology, 24(8), 2151 – 2158.
(2012). Screening for distress and unmet needs in patients with cancer: review and recommendations. Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 30(11), 1160 – 1177.
(2014). Characteristics and effectiveness of complex nursing interventions aimed at reducing symptom burden in adult patients treated with chemotherapy: a systematic review of randomized controlled trials. [Review]. International Journal of Nursing Studies, 51(3), 495 – 510.
(2001). Advancing the science of symptom management. Journal of Advanced Nursing, 33(5), 668 – 676.
(2013). Praxisbuch Interview, Transkription et Analyse: Anleitungen und Regelsysteme für qualitativ Forschende (5. Aufl.). Marburg: Dresing.
(2015). Resilience and unmet supportive care needs in patients with cancer during early treatment: A descriptive study. European Journal of Oncology Nursing, 19(5), 582 – 588.
(2012). Psychosocial interventions to improve quality of life and emotional wellbeing for recently diagnosed cancer patients. The Cochrane database of systematic reviews, 11, CD007064.
(2012). Patient experiences of uncertainty – a synthesis to guide nursing practice and research. Journal of nursing management, 20(2), 266 – 277.
(2009). Routines in medication management: the perspective of people with chronic conditions. Chronic illness, 5(3), 184 – 196.
(2013). Enhancing self-efficacy for optimized patient outcomes through the theory of symptom self-management. Cancer Nursing, 36(1), 26.
(2008).
Theory of symptom management. In Smith, M.J.Liehr, P.R. (2014), Middle range theory for nursing (3rd ed., pp. 141 – 165). New York: Springer Publishing Company, LLC.(2014). Symptom Burden Clusters: A Challenge for Targeted Symptom Management. A Longitudinal Study Examining Symptom Burden Clusters in Breast Cancer. Journal of Pain and Symptom Management, 47(4), 731 – 741.
(2017). Flyer Symptom Navi zur Unterstützung des Selbstmanagements von Symptomen bei Krebs: Evaluation von Anwendbarkeit und Verständlichkeit. Pflege, 30, 151 – 160.
(2017). Symptom-Navi©-Programms-Entwicklung 2011 – 2015. Onkologische Pflege, 7(1), 21 – 27.
(2010). Supporting self-management of chronic health conditions: common approaches. Patient education and counseling, 80(2), 205 – 211.
(2005). Pflegeforschung: Methoden, Bewertung, Anwendung. München: Elsevier.
(2003). Self-management education: History, definition, outcomes, and mechanisms. Annals of Behavioral Medicine, 26(1), 1 – 7.
(2016). Unmet care needs in people living with advanced cancer: A systematic review. Supportive care in cancer, 24(8), 3609 – 3622.
(2011). Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: a cancer journal for clinicians, 61(1), 50 – 62.
(2013). Communication skills training for healthcare professionals working with people who have cancer. The Cochrane database of systematic reviews, 3, CD003751.
(2010). Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA: a cancer journal for clinicians, 60(5), 317 – 339.
(2016). „Entwicklung einer APP zur Förderung des Selbstmanagements bei Krebs: Usability Studie“. Unveröffentlichter Projektbericht, Lindenhofstiftung in Bern.
(2015). The role of advanced nursing in lung cancer: A framework based development. European journal of oncology, 19(6), 740 – 746.
(2011). Symptom burden in cancer survivors 1 year after diagnosis: A report from the American Cancer Society’s Studies of Cancer Survivors. Cancer, 117(12), 2779 – 2790.
(2012). Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health, 12(1), 80.