The world is turned upside down: How parents of children with spina bifida experience transition. A qualitative studyAbstract:Background: The coming of age of a child with spina bifida (SB) requires the transition from ...
Abstract:Background: Topical corticosteroids (TCS) are the mainstay of therapy for paediatric atopic dermatitis (AD). The use of TCS is often met with fear by parents. Assessing this parental TCS fear in clinical practice is ...
Use of support and relief services for parents of children in need of care: Results of the FamBer observational studyAbstract:Background: Parents of children in need of care in Germany can fall back on a variety of relief ...
Sounds in intensive care units: Perspectives of patients and parents. A qualitative studyAbstract:Background: Sound levels in intensive care units exceed internationally recommended limits. This can have negative effects on ...
Storytelling as an innovative method of video-based education for parents of children with atopic dermatitisAbstract.Background: Atopic Dermatitis (AD) is the most chronic skin disease in children and affects up ...
Between Heaven and Hell: Experiences of parents with a critically ill child with extracorporeal membrane oxygenation (ECMO) - A qualitative-explorative study with couple interviewsAbstract.Background: It is a ...
Challenges and needs of families of newborns with congenital diaphragmatic hernia – Music therapy as a supportive intervention?Abstract.Background: Newborns with diaphragmatic hernia (CDH) spend the first weeks ...
Living with bandages: a mixed-methods-study on the view of families of children with epidermolysis bullosaAbstract.Background: Children with epidermolysis bullosa (EB) often need new bandages regularly due to sore ...
Eine interpretierende phänomenologische StudieAbstract.Background: Up to 90 % of patients with congenital heart disease (CHD) now reach adulthood. To avoid lapses in care during the change from pediatric to adult care, a ...
Experiences and support needs of parents of hospitalised children with multiple disabilities: A qualitative studyAbstract. Background: The hospitalisation of a multiple disabled child is stressful for parents because they continue to carry out demanding ...
Zusammenfassung. Hintergrund: Die Hospitalisation eines Kindes mit Behinderung belastet deren Eltern zusätzlich zur gewohnten täglichen Belastung. Obwohl sie meist die Pflege ihres Kindes im Spital übernehmen, fehlt für den deutschsprachigen Raum Wissen ...
Epilepsy is a common and chronic disease which affects persons at every age. Even though medication can prevent seizures, epilepsy has implications for daily living. Sorrows, increased depression rates and restrictions in everyday life were documented ...